This Christmas is likely to be the last one for 7-year-old Addy from England. She is battling against a rare condition known as Batten Disease, which is causing her to forget how to walk, talk, and eat.
Every year, only five children in the UK are diagnosed with this devastating disease, and unfortunately, Addy is one of them. Her family watches helplessly as their precious daughter slowly fades away before their eyes. They fear that this Christmas will be their final opportunity to create cherished memories with Addy.
A Rarity: Childhood Dementia
Batten Disease, also referred to as childhood dementia, is an exceptionally rare condition. The disease affects the nervous system, gradually robbing children of their abilities to think, move, and communicate. Addy’s family is facing an unimaginable struggle as they witness her decline day by day.
Spreading Awareness
While Batten Disease may be unfamiliar to most, it is crucial to raise awareness about its impact on children like Addy. By shedding light on this condition, we can inspire support and compassion for families going through similar experiences.
Cherishing Each Moment
During this holiday season, Addy’s family is focusing on cherishing every precious moment spent with their daughter. They are determined to create memories that will forever hold a special place in their hearts.
The Power of Community
As a community, we can unite and provide support to families like Addy’s during these difficult times. Whether it’s through organizing fundraisers, spreading awareness, or simply offering a listening ear, every gesture can make a meaningful difference.
Let us come together as a community and find ways to support children battling Batten Disease and their families. This Christmas, let’s make it a season of love, compassion, and understanding.
